I started getting blurry vision – now I have to get injections in my EYEBALL to save my sight

A YOUNG woman started noticing her vision was blurry before being diagnosed with a rare disease.

Alisha Khan kept seeing a grey patch from her right eye wherever she looked, with straight lines becoming wobbly.

The nail technician couldn't see anything actually in her eye, so she rushed to hospital.

There she was diagnosed with Punctate Inner Choroidopathy, or PIC, an inflammatory disorder that affects the eye's choroid – the vascular layer.

It mostly affects young and near-sighted women, with symptoms varying from each person.

They can include a blind spot, blurred vision, distorted vision, perceived light flashes and loss of vision.

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Most cases do resolve on their own, but the inflammation can cause permanent visual loss and scarring.

She said: "During the first year of having PIC, I wasn't too concerned as the doctors told me the PIC was stable, there wasn't much activity going on, and there wasn't anything to be worried about.

"I didn't know what PIC was then, and I didn't realise how bad it could get.

"A year later, in February 2020, I noticed another grey patch.

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"I rushed to the eye hospital, and that's when the doctor told me I would need to get an emergency injection in my eye called Ozurdex.

"It is a type of steroid, and the medication is contained within a long-lasting implant and slowly releases the drug over many months.

At one point, I had around eight lesions in the back of my eye; blood vessels were leaking (that's what causes the grey patches, and there was a lot of inflammation).

"So the doctors told me I would have to get another type of injection in the eye and this would be done in a course of three.

"After that, I will need to get it done every four weeks. This treatment is called Eylea.

"Images were missing. I couldn't read text, couldn't write, couldn't work, couldn't see clearly. I could even see the pavement.

"Imagine waking up one day with your vision perfectly fine, then the next you can't see. That feeling is so scary and heartbreaking."

Alisha is fundraising to help keep her afloat when she is unable to work due to her vision.

It's not clear what sparks PIC, but it is thought to involve both genetic predisposition and environmental factors.

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One theory is that it is an autoimmune disease in which multiple genes interact with each other, and an environmental "trigger" (such as an infection or stress) to cause a person to develop PIC.

For people who need treatment, it can include injections, pills, therapies or surgery.

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